Hidden 10 yrs ago Post by Gwazi Magnum
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LoneSilverWolf said
So if it was your child, and the drug was his ONLY chance to live, and it has successfully treated those in his exact situation, you'd let him die just because it hasn't *yet* been approved by the FDA?


They can correct me if my impression is wrong.
But I don't think they're saying that the child should die cause the drug isn't approved.

Just that doing so opens many risks of not only hurting the child but causing the company to suffer.
And by extension many others who may of otherwise benefited from their drug.
Hidden 10 yrs ago Post by StarWight
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BUT, it has worked before, magnum. They have used it on OTHER people in the past, who are in a similar situation as he was. They stand to gain another success story if it works, and judging by the prior evidence, it will. We're not talking about something that's never been used, or that has been shown to kill half the people it's given too. So I'd say there's a lot more to be gained then lost here.
Hidden 10 yrs ago Post by Gwazi Magnum
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LoneSilverWolf said
BUT, it has worked before, magnum. They have used it on OTHER people in the past, who are in a similar situation as he was. They stand to gain another success story if it works, and judging by the prior evidence, it will. We're not talking about something that's never been used, or that has been shown to kill half the people it's given too. So I'd say there's a lot more to be gained then lost here.


It issue is it's not confirmed to be safe enough yet though to be given out to the public like that.
That's why it's still under testing, the risk is still there.

Now note, I understand the concept of going with something not fully in yet and rolling the dice.
My Mom did the same with ABA Therapy when I was diagnosed with Autism (It was simply a small University study atm) and it worked.
I know this kind of stuff can work.

The issue is this one plays with people's lives, in the sense that people could live or die depending on the actions taken.
You're right that in this case (at least from the info we have) odds are in favor of it working.

But if it doesn't, the results could be terrible.

Personally, assuming there aren't any other medical concerns the company has that the media isn't shedding light on I would support getting the child the medication, and if it does go bad take note of it and use it to help improve the product before others take it. But I understand the legal concerns, where they may not even have the chance to give said medication to others if giving it to the child does in fact turn out bad or simply fails to help him.
Hidden 10 yrs ago Post by Jannah
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I think it's also worth noting that the drug was probably given to adults before this and children will often to react to things differently.
Hidden 10 yrs ago Post by Gwazi Magnum
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Jannah said
I think it's also worth noting that the drug was probably given to adults before this and children will often to react to things differently.


True. It's one thing to test on a willing and consenting adult.
Having children be test subjects would be highly frowned upon and is probably illegal.
Even if said child is consenting purely from their own free will.

Though I don't doubt they have some way of testing the effects on children, but we can't be sure how much of that kind of testing has been done yet since it hasn't even been released yet. In america no less who has even lower standards than Canada... and Canada even had drugs/medicine go bad time to time.
Hidden 10 yrs ago Post by Rare
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LoneSilverWolf said
So if it was your child, and the drug was his ONLY chance to live, and it has successfully treated those in his exact situation, you'd let him die just because it hasn't *yet* been approved by the FDA?


Yeah, I would, I'd rather let him die peacefully than in pain. And as for the successful, it's most likely that adults took the drug than kids. Plus, he's a cancer survivor, so the cancer could come back after giving the boy this drug and it would of been pointless. Also, people can react differently to the drug than others.
Hidden 10 yrs ago Post by Jerkchicken
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I'd rather he have the drug and die, then just plain die.

Because it provides like closure; the parents won't have to deal with that niggling "what-if" questions involving the drug they wanted to use
Hidden 10 yrs ago Post by mdk
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LoneSilverWolf said
So if it was your child, and the drug was his ONLY chance to live, and it has successfully treated those in his exact situation, you'd let him die just because it hasn't *yet* been approved by the FDA?


Desperate people accept risks, yes. The rules were put in place specifically to keep people in this situation from taking those unwise risks -- 'snake oil' and the like.
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